Child & Family

Please be patient, this page is being newly developed and updated. Items will be added in the coming weeks. Thank you.

It will have relevant articles and information for parents and carers raising children with haemoglobin blood disorders as well as resoruces for children.

In the meantime we will provide some useful resoruce links:


Sickle Cell Disease: A booklet for parents, patients and the community

This booklet is available online to download in English and German


Understanding Thalassaemia  - Cartoon (video)

A short cartoon explaining thalassaemia for kids and parents ... See Video 


Iron Warriors 

Find information to manage to help you stay strong, fit and keep doing the things you love. Website & Resources availble in English, Indonesian, Turkish, Arabic, Mandarin & Portuguese. 


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