The Thalassaemia and Sickle Cell Society of NSW is a registered charity that was formed in 1978 as a non-profit, self-help group organised by the families of children suffering from thalassaemia, sickle cell anaemia and other haemoglobinopathies.
Providing social support and advocacy for patients and carers
Thalassaemia & Sickle Cell Anaemia are some of the most commonly inherited genetic disorders in Australia
We provide more advice for people around testing for these disorders along with more information about what to do once diagnosed. Your support helps people deal with symptoms and discuss family planning options before they start a family.