What is Thalassaemia

Thalassemia is the name of a group of genetic blood disorders.

Photo: Victor Hugo Casilas Romo.

Courtesy of TIF: www.thalassaemia.org.cy


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Celebrating 40 years of community

The Thalassaemia Society of NSW was originally started in 1978 by a group of resilient families as a self-help Society for families and children living with thalassaemia, sickle cell anaemia and blackfan diamond disorder, with the guidance of health professionals.


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What is Sickle-Cell Anaemia?

Sickle-cell disease (SCD) is a group of inherited blood disorders, the most common type is known as sickle-cell anaemia (SCA).


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Why get a test?

A person can carry the genetic trait and not be aware. People from communities with a higher than average risk of being carriers should be tested, and especially before starting a family.

These are communities with ancestral or ethnic origins from Mediterranean, Middle-Eastern, South Asian, South-East Asia and Africa regions.


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Welcome to ThalNSW

2018 marks 40 years of support, service and community.

This site has been created to give hope, inspiration and recognise the resilience of our friends living with thalassaemia, sickle cell anaemia, blackfan diamond and other blood disorders, and to increase awareness and understanding of haemoglobinopathies. With 5% of Australians being carriers of thalassaemia, it has become one of the most common genetic blood disorders and, health professionals and scientists are working hard for a cure.

أهلا بك        Καλωσόρισμα       Benvenuto       Yincalor        歡迎      Chào mừng       स्वागत हे    

Tel: 02 9550 4844

Become a Member

inform, support, research,

> educating community

> building resilience

> recognising achievement

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Want to keep in touch?

e:  coordinator@thalnsw.org.au  fb: Related image

 

Awareness campaign for young adults - www.knowmytrait.org :
What is Know My Trait?:

 

Know My Trait campaign is aimed a young and 'unaware' community to help build their knowledge and provide steps to making informed choices and taking control. We say 'unaware' as many carriers of the trait have little or no symptoms and so are unaware they carry the trait. Up to 7% of the world's populaiton carry a genetic trait for a haemoglobin blood disorder.

This is a new campaign from the Thalassaemia Society of NSW. It uses safe, trusting colours, iconography, acessable language and multicultural imagery - Visit:  https://www.knowmytrait.org/

Living with and Managing Sickle-Cell Disease

Tiffany's story - "I have sickle-cell but sickle-cell doesn't have me" !

Courtesy of NHLBI USA

June 19th is designated by the United Nations as World Sickle Cell Awareness Day.

Like to know more about Sickle cell disease?  Visit our Page

February 2018 Thal Soc NSW e-newsletter

To access our latest February e-newsletter online click here. Or click here to see all our Newsletters and download pdfs.

PDF icon e-Newsletter February 2018 (modified print version).pdf

Subscribe to our Newsletter

Click to access all our Newsletters which are full of information and events. To subscribe to our online eenewsltter, email coordinator@thalnsw.org.au

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