June 19th: Stories for World Sickle Cell Awareness Day

On June 19th we recognise the strength of the of the sickle cell community and spread awareness about carrying the sickle cell trait and the need for testing. This date has been recognised by U.N resolution and is an important day for public health promotion.

Below are some stories of people who have sickle cell anaemia (the full disease/disorder) and sickle cell trait (carriers) . To learn more visit our page What is Sickle Cell Anaemia?

1. Sickle cell aside, Chesapeake woman making her way in NYC modeling scene

2. The Green Family Storyr (A J Green Singer)

3. Geno Atkins' Story (American Football player)

 

For support in Australia contact: Thalassaemia Society of NSW in NSW & ACT or Thalassaemia & Sickle Cell Society of Australia for Victoria, Tasmania, SA, WA & NT.

See also: Sickle Cell Support Group Australia Facebook page

For stories from Thalassaemia patients see our page: Personal Stories

 

“My story started when a young man met a young lady on the campus of Florida A&M University. On their first date he asked the young woman if she carried the sickle cell trait! That young man became my dad and the young lady is my mother. My dad carries the sickle cell trait and was well aware that if he married someone who also carries the trait, their kids had a 50% chance of being born with full blown sickle cell disease. He discovered that my mother is not a carrier of the sickle cell trait. The rest is history"

Note: In Geno Atkins' story it states: "My dad carries the sickle cell trait and was well aware that if he married someone who also carries the trait, their kids had a 50% chance of being born with full blown sickle cell disease."    The chance, if both parents carry sickle cell trait is 25%.

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