Oct: TIF invites patients to give feedback in Global Patient Survey

The following is an edited mesages from the Thalssaemia International Federation (TIF):

As we are sure you are aware, TIF has faced huge challenges in identifying and assessing the situation regarding thalassaemia services in each country, particularly in large populations, and even greater challenges in trying to promote the role and integrate the involvement of the patient perspective in truly patient-centred healthcare systems.
 
We cannot but underscore the immense progress that has been made in many countries in a number of areas of the control and care of thalassaemia, due to the hard work and dedication of the medical and scientific communities, the highly motivated patient advocates and Associations and the political commitment of their governments.
 
Conversely however, in recent years we are witnessing a global rising of inequality of access to quality healthcare and patient-centred healthcare systems, as defined by the UN Sustainable Development Goals 2030, particularly in the field of haemoglobinopathies.
Hence, wishing to continue this international momentum, and to better tailor TIF’s assistance and support in YOUR COUNTRY, we invite you to complete a short survey. Our target is to collect as many responses as possible to give the opportunity to present to the world the true voice of patients with thalassaemia and sickle cell disease globally. (edited message)
 
Surveys are anonymous and take 10-15 minutes to complete.
 
English:
Questionnaire A for Thalassaemia patients can be accessed online at https://www.surveymonkey.com/r/9XDZP89
Questionnaire B for Sickle Cell patients can be accessed online at https://www.surveymonkey.com/r/9MC395V
 
Arabic:
Questionnaire A for Thalassaemia patients can be accessed online at https://www.surveymonkey.com/r/NS7CLRN
Questionnaire B for Sickle Cell patients can be accessed online at https://www.surveymonkey.com/r/NSQRCBC
 
Greek:
Questionnaire A for Thalassaemia patients can be accessed online at https://www.surveymonkey.com/r/NW7HHYL
Questionnaire B for Sickle Cell patients can be accessed online at https://www.surveymonkey.com/r/NQ3DRD8
 
Other Languages:
For questions, TIF can be contacted at thalassaemia@cytanet.com.cy
 
Deadline for completion: 30 October 2017
Tags: 
Go to top