Mar 2017: TIF launch Thalassaemia Patients Connect - a shared communication space for patients & associations

Thal Patient Connect

The Thalassaemia Patients Connect project, recently launched by the Thalassaemia International Federation (TIF), sets out to provide a shared communication space, giving individual patients and patient associations worldwide the opportunity to interact, ask for and share information with each other regarding thalassaemia.

The communication space includes a discussion board (forum), a Facebook page, a WhatsApp chat group, a YouTube channel and a Twitter, all under the name of Thalassaemia Patients Connect. See Communication Channels here

Exceptional patient personalities with national and international experience moderate the discussion on all channels. The members of the Expert Patient Call Group all live in countries around Europe and America, applying TIF policies. They are thus able to provide reliable information in regards to formal positions. The TIF team has also contacted medical advisors who have agreed to share their expertise with the TPC community, providing reliable knowledge and expertise to those who need it. Administrators and moderators are responsible for directing questions and requests for medical advice to the team’s medical advisors. Please see full Terms and Conditions here.


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