Info for Patients

Information for Patients:

TIF Thalassaemia Patients Connect

The Thalassaemia Patients Connect project, launched by the Thalassaemia International Federation (TIF), provides a shared communication space, giving individual patients and patient associations worldwide the opportunity to interact, ask for and share information with each other regarding thalassaemia. 

Scientists discover way to produce unlimited blood supply

New method to produce blood in a laboratory is more costly but could aid in shortages of rare blood types.

Teenager's sickle cell reversed with world-first therapy

BBC News, March 2017: A French teenager's sickle cell disease has been reversed using a pioneering treatment to change his DNA. The world-first procedure at Necker Children's Hospital in Paris offers hope to millions of people with the blood disorder.

Living with Thalassaemia

Living with Thalssaemia can be challenging but several lifestyle and treament approaches can help people cope.

Iron: Is too much harmful?

Chronic iron overload occurs when the body’s limited iron storage capacities are exceeded. Because there is no natural mechanism to remove excess iron from the body, iron builds up – first in the liver, then in hormonal organs like the thyroid and pituitary glands, and eventually in the heart. The major cause of chronic iron overload is regular blood transfusions. Iron Overload Infographic

What to Expect when you go for an MRI for heart or liver iron

An American publication about Magnetic Resonance Imagaing (MRI) for assessing amounts of iron in our organs.


Hepatitis C
For information & resources visit: Hepatitis NSW website
Hep C Helpline (02) 9332 1599 or 1800 803 990 for all other callers

Diabetes
For information & resources visit:
Diabetes NSW & ACT

Refugee Health

The NSW Refugee Health Service assists both refugee families and health practitioners. It provides free health assessment for recently arrived refugees through clinics run by a medical practitioner, nurse and with professional health care interpreters. There are also refugee paediatric clinics at Liverpool, Westmead and Sydney Children's hospitals. The Health Assessment for Refugee Kids (HARK) clinic is located at Westmead Hospital.

NSW Service for the Treatment and Rehabilitation of Trauma and Torture Survivors (STARTTS) provides mental health programs and support.

 

Related Pages:  Patient Support  -  Personal Stories   -   Resources

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