2017 Membership - support the Society with advocacy, awareness and resilience-building


Applications for membership are now accepted online! Become a Member


Your Membership or Donation is vital for many reasons

Helps raise funds for:

  • Urgent medical equipment such as slow infusion pumps. 
  • World class Medical Research Projects such as Stem Cells, Gene Therapy, Foetal Haemoglobin, Bone Marrow Transplants, Haemoglobinopathy Registry, Iron Chelators etc.
  • Other Medical services such as a MRI T2* for our patients. 
  • Equipment for our Main Treating Centres such as chairs, vein finder, TV’s, etc.

Supports greater awareness and education through: 

  • Development of publications and materials for health professionals
  • Community Education programs in community groups, especially newly-arrived and emerging (CALD-Culturally and Linguistically Diverse) communities, schools and hospitals.

Services for Members:

  • Keeps you informed of important issues relevant to patients and families with newsletters, website and social media updates.
  • Family outings, social events and education workshops o Resilience building and peer mentoring programs o Patient and Family counselling and provision of needed medical equipment

Strengthens the Society: 

  • Enables the day to day operations of the Society
  • Maintains a strong community profile and advocacy base 


  • Raises our voice for greater Government support & assistance
  • Enables greater input within NSW Health and Hospital Administration 
  • Enables work with partner organisations to promote haemoglobinopathy issues

謝謝   Grazie    شكرا    Ευχαριστώ    धन्यवाद     Thank You    Cảm ơn bạn

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