Applications for membership are now accepted online! Become a Member
Your Membership or Donation is vital for many reasons:
Helps raise funds for:
- Urgent medical equipment such as slow infusion pumps.
- World class Medical Research Projects such as Stem Cells, Gene Therapy, Foetal Haemoglobin, Bone Marrow Transplants, Haemoglobinopathy Registry, Iron Chelators etc.
- Other Medical services such as a MRI T2* for our patients.
- Equipment for our Main Treating Centres such as chairs, vein finder, TV’s, etc.
Supports greater awareness and education through:
- Development of publications and materials for health professionals
- Community Education programs in community groups, especially newly-arrived and emerging (CALD-Culturally and Linguistically Diverse) communities, schools and hospitals.
Services for Members:
- Keeps you informed of important issues relevant to patients and families with newsletters, website and social media updates.
- Family outings, social events and education workshops o Resilience building and peer mentoring programs o Patient and Family counselling and provision of needed medical equipment
Strengthens the Society:
- Enables the day to day operations of the Society
- Maintains a strong community profile and advocacy base
Advocacy:
- Raises our voice for greater Government support & assistance
- Enables greater input within NSW Health and Hospital Administration
- Enables work with partner organisations to promote haemoglobinopathy issues
謝謝 Grazie شكرا Ευχαριστώ धन्यवाद Thank You Cảm ơn bạn
