Support

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Patient Support:

1. Request for T2 MRI or Infusion Pump** support for patients (with thalassaemia or other haemoglobinopathies) within NSW

To be eligible, the patient is required to be a current member of the Thalassaemia Society of NSW and complete an application form signed by a treating Haematologist.

** Please note once approved, it take 10 buisness days for delivery.

Download a Pump Application Form

Download a Membership Application Form or apply for Membership online

2. Counselling Support:

Counselling is available to members and patients as well as family members and partners of patients. Patients can refer themselves or be referred by their Clinical Nurse or Haematologist. 

There is no charge and the service begins with an initial session, with up to 10 sessions.

  1. Why request counselling support? There are many different reasons: 

    • Depression or Anxiety

    • Compliance issues or concerns

    • Substance use/abuse; Drinking/binge drinking

    • Parents struggling to manage/cope or relationship issues

    • Transitioning from Children’s hospital to the adult’s hospitals; Adolescent issues;

    • Eating disorders; Challenging behaviour; Suicidal thoughts; Self- harming

  2. The approach depends on the patient’s needs and may include:

    • Patient-centred counselling 

    • Cognitive-behavioural counselling 

    • Solution Focussed Therapy

Please contact: counsellor@thalnsw.org.au 

3. Equipment Support:

The Society listens to patient's and CNC/Doctor's feedback and provides equipment for our Treating Centres such as chairs, vein finders, TV’s and other facilities.

To discuss further or provide ideas, please contact the Coordinator.

4. Family & Peer Support:

The Society organises events and outinsg and links aptients with each otehr for support. Thse include:

  • Family outings, social events and education workshops
  • Resilience building workshops
  • Peer mentoring programs

 

Grant Applications for Research Projects (within Australia):

The Thalassaemia Society of NSW accepts expressions of interest for Support or Funding for Research Projects. Please contact the Coordinator directly.

 

Related Links:  Updates & Events  /  Newsletters  /  LinksUseful Patient info

 

FAQs: Frequently Asked Questions

 

Patient Resources

Useful patient articles and videos for Patients with Thalassaemia and Sickle-Cell disease

 

 

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